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Her ALS Story is a group of women diagnosed with ALS before their 35th birthdays. To challenge the stereotype that ALS is an older white man’s disease, they foster an open dialogue about our declining health in female-centric media outlets. They cultivate relationships with female lawmakers to improve current insurance and Medicare standards, and introduce legislation to speed up the drug pipeline. They raise money for the pursuit of unbiased, supercharged ALS research to ultimately end this devastating disease.
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Project ALS identifies and funds the most promising scientific and medical research that will lead to the first effective treatments and a cure for ALS. They recruit the world’s best scientists and doctors to work together—rationally and aggressively—to develop a better understanding of the ALS disease process and, in parallel, better therapeutic strategies.
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BodyScience’s specialty is cell repair for all types of neurodegenerative disorders with a special focus on ALS. They use the most promising therapies and bundle them in a unique combination for each person.
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HEALING ALS MISSION: 1) Educate people diagnosed with ALS (PALS) and families about holistic protocols that can slow, stop and even reverse ALS progression. 2) Change Standard of Care for all ALS patients to include nutritional testing, gut and liver function testing and toxin testing, as well as appropriate treatment to correct these.
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I AM ALS is a patient-led community that provides critical support and resources to patients, caregivers and loved ones. We empower advocates to raise mainstream awareness and lead the revolution against ALS in driving the development of cures.
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The ALS Therapy Development Institute (ALS TDI) is the world's foremost drug discovery lab focused solely on ALS. As a nonprofit biotech they operate without regard to profit or politics.
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Ales for ALS™ is a national fundraising campaign created in 2013 by a Yakima Valley hop farming family to raise funds and awareness for ALS, or Lou Gehrig’s disease. Each year, their hop farm, Loftus Ranches, and Yakima Chief Hops donate a unique hop blend, developed by master brewers, to select breweries across the country.
Participating breweries select the quantity they would like, and receive the special blend of experimental hop varieties, free of charge. In return, we ask that a minimum of $1 per pint brewed with this blend be donated to advance ALS research at the ALS Therapy Development Institute (ALS TDI).
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Team Gleason’s mission is to improve life for people living with ALS by delivering innovative technology and equipment, as well as providing and empowering an improved life experience.
Team Gleason has provided over $18 million in adventure, technology, equipment, and care services to over 20,000 people living with ALS and countless others through advocacy, support and ultimately bringing an end to the disease.
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Compassionate Care ALS (CCALS) is a nonprofit organization with a mission to support people diagnosed with ALS, their families, healthcare providers, and communities as they navigate the complexities, both physical and emotional, associated with the disease. The organization provides resources including equipment, educational opportunities, Medicare/Medicaid assistance, communication assistance, guidance and awareness with regards to living with ALS, caregiving, and exploring end-of-life when invited.
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ALSUntangled™ reviews alternative and off label treatments, with the goal of helping people with ALS make more informed decisions about them.
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EverythingALS is a patient-focused non-profit, part of Peter Cohen Foundation, a 501(3)c organization, bringing technological innovations and data science to support efforts -- from care to cure -- for people with ALS, by offering a open-data platform for direct engagement with patients, caregivers, researchers and drug companies.